Every day is such a battle. A battle with health, money and just life. I wake up at 11am with my alarm otherwise I would sleep all day due to chronic fatigue plus the opioids and amitriptyline! I struggle to get up and feel like I haven’t slept even though I have had 11 hours. … Read more
As you know I can’t get ESA or UC so I live on PIP alone which isn’t enough to live on. You can read more about it here.With energy prices going very high (especially gas), the government recently posted they ways they help the vulnerable.Here is the article. It reads like all the vulnerable get … Read more
Does the NHS not care about “reasonable adjustments” as per the equality act? Doesn’t seem to seeing as they don’t let you go to closer clinics when you are disabled and housebound!They are supposed to provide reasonable adjustments just like any other company is supposed to. Sadly they don’t always and in my experience, have … Read more
I now have developed bladder issues. Another thing to add to the list! And I have added to the list literally on my about me page which lists all my conditions and medicines. I had many UTI’s over a few months last year. After that my bladder didn’t seem to fully recover. Time passed and … Read more
Recently I have a few updates about rheumatology, MRI, PIP and medical crowdfund. Rheumatology I was seen in Rheumatology again due to my abnormal autoimmune blood tests. The doctor this time spent 3 minutes total telling me my skin is ok and then took me out of the room while I was still talking to … Read more
If you didn’t know already, I have a FAQ which answers all the questions I get asked the most. If you have any questions check this out as all the usual question and answers are there. I have the page as it hurts and is very energy draining to type so if I can minimise … Read more