Since increasing to 75mcg Fentanyl patches I have noticed I am much more tired. I was tired on the 50mcg but not like this. I slept for over 10 hours, woke up and wanted to sleep again. Ended up falling asleep downstairs a few hours later. I was super hot for the first few days … Read more
Had my fortnightly telephone appointment with the doctor. He was in such a rush on the phone.He wanted to increase my Fentanyl patches so now I am on 75mcg but I said if I want to go down can I without side effects and he said yes but who knows as I know how your … Read more
The doctor made a huge mistake.Had my telephone appointment and I said maybe I should stay on this dose 2 more weeks to see how I go. It doesn’t touch the moving pain but helps the idle pain but also runs out of the day you change your patch. Don’t really want to go on … Read more
I told the dermatologist my concerns about having oral medication that affects your immune system for my hidradenitis suppurativa whilst currently trialling pain medication plus having chronic fatigue, as I know dapsone is not that effective for HS plus makes you tired and can give you aches and pains.He agreed it can make me more … Read more
I have my dermatologist appointment tomorrow for my skin condition Hidradenitis Suppurativa which has no cure. I have tried lots and nothing works. There is Humira which is the only treatment proven to do anything which is weekly injections but they can’t prescribe it, I would have to go to another city every week for … Read more
I saw my doctor again today as I do every two weeks, and again Fentanyl dose increase to double what I am currently on. So now on 50mcg Fentanyl (Matrifen) patches, and the codeine that does nothing as needed for “breakthrough pain”, although breakthrough pain is constant really as the patches only do a very, … Read more