FAQ About Me

I get asked a lot of the same questions from different people pretty much every day, and have to type the same things out over and over which makes my fatigue and pain so much worse, plus it’s a bit annoying to have to keep explaining myself over and over every day. So I decided to make a FAQ on the most asked questions.

This answers all the usual questions. I have spent years fighting for benefits I can’t get that I should. I know 100% for sure what I can and cannot get. I have spoken to citizens advice, all the benefit checkers, DWP hundreds of times, MP’s many times, even parliament numerous times now too!
I have done all I can.

If there isn’t something you wanted to know here, feel free to ask! I will update this as needed.

Q: How much do you get a month
A: I get a total of just over £300 a month before any outgoings which is horrific and not enough to live off so I struggle every month! My medication alone totals £206 a month which I have to had to crowdfund some of as I can’t afford it but need it to live!

Q: How much do you pay for your medications a month?
A: I pay just under £11 a month NHS and £195 a month none-NHS for total £206 a month prescriptions. I cannot get free prescriptions!

Q: Have you tried looking what benefits you can get?
A: Yes I have (many times over many years) and I get the only one I qualify for which is PIP.
I don’t get anything else as it is either I haven’t paid enough NI credits or because I don’t live alone, their finances get taken into account. This means I can’t get ESA, UC, warm home etc.
I have researched it all and spend many hours over the years trying and fighting but you can only apply for what you are eligible for, even with the ridiculous rules.

Q: Have you spoke to a benefits advisor/ MP/DWP
A: Yes I have spoken to numerous benefit advisors, citizens advice, my MP many times, the DWP hundreds of times and even parliament twice! I’ve now spent YEARS fighting but there is nothing I can do.

Q: Have you tried benefit entitlement checkers like Turn2Us
A: Yes many times! I have done them all! Turn2Us, citizens advice, entitled to, Government site and more!
As I said, I don’t qualify for anything else or I would be claiming it! I am not just sitting here saying I can’t get more without checking, I have been fighting for well over a year for more money, but I can’t get more as I am excluded usually because I haven’t paid enough NI credits or because I don’t like alone and their finances get taken into account. If you go to the gov.uk site and read the benefit requirements, you will see what I mean. You can’t just get a benefit because you are disabled it doesn’t work like that! There are requirements that you must fulfil!

Q: Do you get ESA/UC?
A: No to both! Even though I can’t work and am disabled with numerous chronic illnesses, I don’t qualify due to their rules and requirements which is ridiculous. Basically the fact I worked part time for as long as I could, rather than to claim benefits early, means that I have paid National Insurance so I don’t qualify for ESA.
It has been years now, it is not for lack of trying, it is that you have to meet their requirements exactly or like me, you don’t get a penny!
New style ESA is the only ESA for new people now which is contribution based. Income based ESA is now replaced by Universal Credit which I can’t get either as it takes into account your households income. As I share a house as I can’t afford rent on £300 a month, their income gets taken into account which is ridiculous.
I cannot get ESA or UC, hence am on just over £300 a month total income.

Q: Have you tried phoning them as you should get ESA if you are disabled
A: As above! Yes, many times. I can’t get it as per above.

Q: You are wrong, I get x or y!
A: As above! No I am not wrong. Read the requirements of each benefit on the government site, read the restrictions and eligibility requirements and read what I wrote here. I can’t get anything more. You have to fulfil all the requirements! What you get will be different to me. Your situation won’t be the same as mine! Just because you get something doesn’t mean I will. All benefits have eligibility requirements and you have to tick all the boxes. Check the government site. It shows you clearly what you need to get which benefit.

Q: You should speak to a benefits advisor then
A: I have many times! Please read the other question and answers. I have spoken to everyone I can and done every benefit checker known to man as well as call anyone and everyone I can!

Q: Do you get warm home for your energy bills?
A: No I do not. I can’t get it as I can’t get the other benefits (as stated above) so I don’t qualify. The eligibility is stated on the government site. There is a core group and a broader group. I can’t get either as I don’t get a qualifying benefit.

Q: Do you get WaterSure?
A: No I do not qualify as I don’t get the required benefits to qualify.

Q: So what do you get then?
A: As I said, just PIP which is just over £300 a month. That is it!
I still have to pay for bills like everyone else plus food, medication totalling £206 every month! Do the math and you will see it doesn’t add up.
Can’t get ESA
Can’t get UC
Can’t get Warm Home
Can’t get Water Sure
Can’t get free prescriptions
Can’t get any other help whatsoever from this awful government who don’t care about people like myself.

Q: Do you have any relatives to help?
A: My parents and grandparents are all dead and I have no relatives at all, such as siblings or aunts/uncles/cousins etc, there is just me.

Q: Why don’t the DWP help you more?
A: They have specific eligibility and if you don’t meet all, you don’t qualify. It’s that simple! Too many people think all you need is to be disabled and bang you get ESA and UC. Not at all!! You have to qualify by fulfilling all the requirements! Go to the government site and check ESA. Look at the requirements. Those are eligibility requirements that you HAVE to meet. You can’t meet all but 1. You have to tick all the boxes as I like to say. You need to qualify.
I can’t afford rent anywhere in the country, not even council house rent as I just get £300 a month. That means no landlord. I live with someone and pay towards bills, my medication and my food etc. Their income gets taken into consideration as well! That’s why it’s so ridiculous. The government is Tory so it’s unlikely to ever change.

Q: Have you tried cannabis?
A: Yes I am legally prescribed it and it works well (actual cannabis, not CBD!), but I can’t get it on the NHS for pain and I have to get it from a private doctor which costs hundreds a month so I have to crowdfund it!
I am currently crowdfunding on JustGiving to be able to afford it for up to a year as there is nothing else on the NHS. (If you can spare a few pounds/dollars, please help if you can) I run out at the end of October so any help is appreciated as I can’t afford it without help sadly. (21st October now & almost out!)

Q: Have you thought about buying <insert anything here>
A: I have £300 income a month before bills, I don’t have the money for anything! Not even something cheap!!

Q: Have you tried <insert anything here for my chronic illnesses>
A: Yes I have tried literally everything over the actual decades I have had these conditions and no it doesn’t work (full list on my about me page). I have tried everything on the NHS as well and am on the last and strongest painkiller available!

Q: How can you afford cannabis from a private doctor for your chronic pain?
A: I can’t!! I am relying on help from kind people. I don’t have any relatives and I can’t work so I really do need help from anyone who can spare even a few pounds/dollars.
I have a prepayment for my NHS medications and have to pay in full for the non-NHS medications.
If you want to help, please do! Check out my support me page which also has info on my medical crowdfund. I am due to run out end of October 2021 and I have no crowdfund money left after October. Help is massively appreciated!

Q: What do you eat?
A: I have just two small meals a day costing a total of around 50p-65p. I have a small bowl of value priced cereal or oats and UHT milk for breakfast/lunch and for dinner I have things such as value pasta or rice and often something frozen such as value chicken with it.
Nothing special but there isn’t much you can buy for such a little amount of money.
I cannot cook food as I don’t have the health so I can’t cook from scratch anyway but the lack of money and the bad health mean it has to be very quick and cheap things no matter how boring they are.

Q: Why don’t you cook from fresh?
A: Quite simply I don’t have the health or money. I shop once a month and get my groceries delivered. I can’t go out and don’t have a car. I can’t shop more often as it costs so much to get it delivered with delivery fees and minimum basket fees. I order enough to last me all month so the food is packet, dried or frozen.
I can’t cook anymore due to my chronic pain and chronic fatigue. I can’t even do it sitting down.

Updated 27th October 2021

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