Autoimmune Struggles

Autoimmune Struggles

After getting four positive autoimmune tests and seeing as the rheumatologist isn’t any help and my doctor said to me that he doesn’t know about autoimmune issues, I am now stuck as he won’t refer me to an immunologist. I have had chronic pain and chronic fatigue for decades now, but they both got severely … Read more

Rheumatology Referral Woes

Rheumatology Referral Woes

I chased up my Rheumatology referral today after the deadline that they were supposed to call back arrived and they hadn’t called me. For those that don’t know, I had four positive autoimmune tests, plus I also have my existing chronic pain and chronic fatigue, both with no known cause. (previous blog post) I got … Read more

Follow Up Blood Test Results

Follow Up Blood Test Results

After my autoimmune tests came back positive for four different things (previous blog post), I had another test for liver functions, B12 and folate. The tests came back with B12 and folate being ok, my liver tests came back with most being ok and Serum alanine aminotransferase level being “borderline”. Now these tests were because … Read more

Nothing For Chronic Fatigue While Post Covid Fatigue Gets £10 Million

Nothing For Chronic Fatigue While Post Covid Fatigue Gets £10 Million

I was incredibly angry to read that the NHS in the UK will be spending £10 million funding “long covid” clinics in every area for those that have fatigue after having corona and even more money for National Institute for Health Research research, plus also they get different advice to those of us with CFS. … Read more

Chronic Pain Is Not All The Same

Chronic Pain Is Not All The Same

One thing that a lot of people seem to not realise is that pain levels vary between people and severities in chronic pain. Just because you have chronic pain and so does the next person, that doesn’t mean your pain is the same as theirs! Pain levels vary dramatically.You can have chronic pain and it … Read more

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