Autoimmune Struggles

Autoimmune Struggles

After getting four positive autoimmune tests and seeing as the rheumatologist isn’t any help and my doctor said to me that he doesn’t know about autoimmune issues, I am now stuck as he won’t refer me to an immunologist. I have had chronic pain and chronic fatigue for decades now, but they both got severely … Read more

Rheumatology Appointment Was Dreadful

Rheumatology Appointment Was Dreadful

Well my Rheumatology at the hospital was a waste of time and pretty dreadful! As you may know I have chronic pain and chronic fatigue, both of which got much worse in the last 3 years to the point I was bedbound without the strongest pain medication.It dramatically got worse very quickly. The fact they … Read more

Nothing For Chronic Fatigue While Post Covid Fatigue Gets £10 Million

Nothing For Chronic Fatigue While Post Covid Fatigue Gets £10 Million

I was incredibly angry to read that the NHS in the UK will be spending £10 million funding “long covid” clinics in every area for those that have fatigue after having corona and even more money for National Institute for Health Research research, plus also they get different advice to those of us with CFS. … Read more

What A Wish List Looks Like When You’re Chronically Ill

What A Wish List Looks Like When You're Chronically Ill

When you’re chronically ill, your wish list often looks much different to someone who is not chronically ill.Some items you may see on chronically ill peoples wish lists and not realise why they have it there, so this might help.Here are some examples from what a few chronically ill people including myself want or have … Read more

error: Content is protected