2021 End Of Year Catch up

2021 End Of Year Catch up

I thought I would write a little post with an update about everything that has been happening recently in an end of year update for 2021. Pain My chronic pain has been getting worse and new pains have developed. I now have tendonitis in my foot too. He didn’t look at them so this is … Read more

Forced To Crowdfund Electric Wheelchair For Independence

Forced To Crowdfund Electric Wheelchair For Independence

As you know, I am housebound and barely ever see outside these four walls, other than for medical appointments. I hate it and being stuck inside is a horrible feeling.I have no freedom. No independence. I had to start a crowdfund for an electric wheelchair (also called a powerchair) as I really need to be … Read more

Can’t Get Flu Vaccine Free on NHS Even Eligible With CFS/ME!

Can't Get Flu Vaccine Free on NHS Even Eligible With CFSME!

Having chronic fatigue (CFS), I should be able to get a free flu vaccine every year but I don’t!Why? Because doctors, nurses and other people read the eligibility but as they don’t see CFS/ME written there, they say you aren’t eligible. YOU ARE!CFS/ME are neurological conditions which DO qualify for a free flu vaccine. The … Read more

Why Is Life So Hard When Chronically Ill And Disabled?

Why Is Life So Hard When Chronically Ill And Disabled?

Every day is such a battle. A battle with health, money and just life. I wake up at 11am with my alarm otherwise I would sleep all day due to chronic fatigue plus the opioids and amitriptyline! I struggle to get up and feel like I haven’t slept even though I have had 11 hours. … Read more

Updates on Rheumatology, MRI, PIP And Crowdfund

Updates on Rheumatology, MRI, PIP And Crowdfund

Recently I have a few updates about rheumatology, MRI, PIP and medical crowdfund. Rheumatology I was seen in Rheumatology again due to my abnormal autoimmune blood tests. The doctor this time spent 3 minutes total telling me my skin is ok and then took me out of the room while I was still talking to … Read more

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