I have started a crowdfunder to try to raise money for a years worth of medical cannabis. This would be a life saver for me! Please help if you can on Justgiving
In England, you can get cannabis for chronic pain medically legal, BUT only if you go see a private doctor and pay hundreds a month.
NICE who make the guidelines for the NHS won’t allow medical cannabis for chronic pain at all even though it works and millions can tell them that but they won’t read any research and don’t do their own either.
I have severe 10/10 chronic pain and am on Fentanyl after trying everything else, plus morphine for breakthrough pain. I am still in severe 8/10 – 9/10 pain all the time although am not bedbound and screaming night and day like I was when it was at 10, but I am still housebound and unable to do anything plus can barely move, walk nor stand more than a few mins.
The pain is horrific. The Fentanyl knocks it down 1 or 2 to make me not be bedbound, screaming all the time and the morphine barely does a thing as my pain is so severe.
I have withdrawal between patches where I sweat and get old flushes even though I am sweating even though we changed the patches to 48 hour interval instead of 72.
I take clonidine for withdrawal but it doesn’t work anymore. The withdrawal is horrible but I can’t go higher as I was up there and I couldn’t keep awake!
Amitriptyline for sciatica and migraines.
I have to speak to my doctor every 3 weeks and will forever or until the fentanyl stops working and I can’t go on with the pain.
I have chronic fatigue as well so that plus the opioids make it so I can barely keep awake. I fall asleep a lot and need 11 hours sleep but even then it isn’t enough so I struggle to get up.
Every day is horrible and a struggle with pain, fatigue and withdrawals.
Cannabis helps for a fact and helps with stiffness, migraines and sciatica too but I can’t get it as I don’t have money!!
NICE blame cost and say it doesn’t work when we can tell them it does work. As for money, my fentanyl, morphine, clonidine, amitriptyline and speak to the doctor every 3 weeks will cost more than the cannabis, plus we should be able to get what works!
I can’t get a natural safe plant, non addictive, hasn’t killed anyone, but am on the strongest painkiller in the world?
The NHS should help me! Why should it be a case of if you have money you can get the care you need? That is why we have the NHS, but it doesn’t work for people like me.
Yes in other countries where it’s legal you pay for it, but it’s not as much as it is here, plus the appointments high cost and repeat appointments you have to go to all cost.
I live on just over £300 a month before bills and prescriptions which I have to pay for. I do not have hundreds a month for cannabis.
The private doctors don’t do anything to help people like myself. They won’t try to help people with no money who are suffering and give them it free as they are private doctors.
If you get it from a private doctor, you have these fees:
Initial consultation fee – £100-£240
First follow up – £55-£150
Quarterly doctors appointment fee – £50-£80
Monthly prescription fee – £30-£50
Monthly cannabis fee every month – £150-£500
I get just £300 a month so yeah, how am I going to do that? I am not, that’s how.
Why should I have to suffer for something medically legal and available? I should get the painkiller I need that works for me! I can barely keep awake, still have severe pain and can’t get a painkiller that is there IF I had money.
I wish someone could help me get it. I have had this pain many, many years before it got horrific like it is, and it is so bad that I need the painkiller that works for me!
It would cost so much money to get it, money I don’t have!
This country is cruel and I am suffering.