I have started a crowdfund to try to raise money for a years worth of medical cannabis. This would be a life saver for me! Please help if you can on Justgiving In England, you can get cannabis for chronic pain medically legal, BUT only if you go see a private doctor and pay hundreds … Read more
When I spoke to the doctor recently on my 3 weekly review, I also mentioned my chronic fatigue (CFS/ME) again. This is one that even after decades of having this, doctors just brush it off like I am just a bit tired when I am actually unbearably struggling to keep awake and so exhausted all … Read more
This is a list of things not to say to people with a chronic illness. Why? Here are a few reasons! We see our doctors very frequently, I for example speak to my doctor every 2 to 4 weeks (yes that frequent!), and they know better than you. Some of us have had this for … Read more
I worry often about what will happen when I am no longer able to get the Matrifen or an equivalent.Matrifen is the only thing that touched the pain that I can get on prescription. I get chills and sweats on the night before I change my patch which is awful but that is because it … Read more
The withdrawal I get between patches is getting MUCH worse the last week or so. I get chills and sweats at night, but it has been getting so I wake up in a wet bed from the sweat but too cold to uncover myself as I then shiver. I have also been getting restless or … Read more
This is an insight into my daily life which I find very depressing and monotonous.A typical day for me is I wake up around 10-11am but I lay there until I can get the energy to get out of bed which is 10.45-11am or a little after but I try to get up by 11am … Read more