I was trying to work out how different I feel on medication to how I was before I started any. I had been on so many different medications that did nothing but give me side effects before I was put on the Fentanyl that helps the pain a bit with the least side effects so … Read more
Had my fortnightly telephone appointment with the doctor. He was in such a rush on the phone.He wanted to increase my Fentanyl patches so now I am on 75mcg but I said if I want to go down can I without side effects and he said yes but who knows as I know how your … Read more
I am spending so much time in bed. I normally spend a lot there due to pain and fatigue, but now I am spending even more there just to get comfortable. I have an incredibly uncomfortable living room chair which I spend most of my time in. Unfortunately it is making my pain worse as … Read more
I told the dermatologist my concerns about having oral medication that affects your immune system for my hidradenitis suppurativa whilst currently trialling pain medication plus having chronic fatigue, as I know dapsone is not that effective for HS plus makes you tired and can give you aches and pains.He agreed it can make me more … Read more
I have my dermatologist appointment tomorrow for my skin condition Hidradenitis Suppurativa which has no cure. I have tried lots and nothing works. There is Humira which is the only treatment proven to do anything which is weekly injections but they can’t prescribe it, I would have to go to another city every week for … Read more
Another horrible day filled with so much pain. From the moment I open my eyes on a morning, it is nothing but severe pain. I can’t even sit in a chair with no pain, I can’t even get comfy and sit for long at all. The only place comfortable is bed. I dread each day … Read more