After getting four positive autoimmune tests and seeing as the rheumatologist isn’t any help and my doctor said to me that he doesn’t know about autoimmune issues, I am now stuck as he won’t refer me to an immunologist. I have had chronic pain and chronic fatigue for decades now, but they both got severely … Read more
I chased up my Rheumatology referral today after the deadline that they were supposed to call back arrived and they hadn’t called me. For those that don’t know, I had four positive autoimmune tests, plus I also have my existing chronic pain and chronic fatigue, both with no known cause. (previous blog post) I got … Read more
After my autoimmune tests came back positive for four different things (previous blog post), I had another test for liver functions, B12 and folate. The tests came back with B12 and folate being ok, my liver tests came back with most being ok and Serum alanine aminotransferase level being “borderline”. Now these tests were because … Read more
After spending YEARS trying to get more blood tests for my chronic pain and chronic fatigue, I finally got my GP to send me for autoimmune tests!I have had chronic fatigue for 30 years roughly and chronic pain for around 12 roughly, both which got dramatically much more severe in the past few years, and … Read more
I was incredibly angry to read that the NHS in the UK will be spending £10 million funding “long covid” clinics in every area for those that have fatigue after having COVID and even more money for National Institute for Health Research research, plus also they get different advice to those of us with CFS. … Read more
One thing that a lot of people seem to not realise is that pain levels vary between people and severities in chronic pain. Just because you have chronic pain and so does the next person, that doesn’t mean your pain is the same as theirs! Pain levels vary dramatically.You can have chronic pain and it … Read more