Rheumatology Appointment Was Dreadful

Rheumatology Appointment Was Dreadful

Well my Rheumatology at the hospital was a waste of time and pretty dreadful! As you may know I have chronic pain and chronic fatigue, both of which got much worse in the last 3 years to the point I was bedbound without the strongest pain medication.It dramatically got worse very quickly. The fact they … Read more

Rheumatology Referral Woes

Rheumatology Referral Woes

I chased up my Rheumatology referral today after the deadline that they were supposed to call back arrived and they hadn’t called me. For those that don’t know, I had four positive autoimmune tests, plus I also have my existing chronic pain and chronic fatigue, both with no known cause. (previous blog post) I got … Read more

ASDA Priority Pass Chaos Leaves Vulnerable Unable To Order Food

ASDA Priority Pass Chaos Leaves Vulnerable Unable To Order Food

Updated 5th NovemberThey now have sent out more conflicting information regarding Christmas slots with 2 emails with different information on both! Information below. ASDA recently said it was supposed to be free delivery over £40 from November, below that there would be delivery and minimum basket fees.Well, now they are trying to go back on … Read more

Please Sign And Share A Disability Benefit UK Government Petition

Please Sign And Share A Disability Benefit UK Government Petition

If you read my blog or Twitter, you will know that I can’t get ESA due to not having paid enough National Insurance Contributions due to having worked part time before being unable to work anymore, which was below the hours needed to pay NI contributions. By pushing myself to work as long as I … Read more

Nothing For Chronic Fatigue While Post Covid Fatigue Gets £10 Million

Nothing For Chronic Fatigue While Post Covid Fatigue Gets £10 Million

I was incredibly angry to read that the NHS in the UK will be spending £10 million funding “long covid” clinics in every area for those that have fatigue after having COVID and even more money for National Institute for Health Research research, plus also they get different advice to those of us with CFS. … Read more

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